Archive

Author Archive

Gabba Gabba Hey!

I’ve tried Cymbalta and acupuncture to extinguish the fire in my feet caused by chemo-induced peripheral neuropathy.

I ditched the Cymbalta after taking it for 4 days and getting no relief. I’ve also undergone 6 acupuncture treatments so far with no bottom-line results. I’m still going to continue the acupuncture treatments for a while at $120 per pop because it feels good even though I’ve got a bunch of needles stuck in me by Dr. Wang for an hour. One of my dear friends jokingly said I liked it because I was being “poked by a wang“. Damn, I wish I came up with that!

My latest attempt at managing the heat is to take the anti-seizure drug Gabapentin (a.k.a. Neurontin). Lo and behold, it fuckin’ WORKS for me. Yay! It takes the heat away but it doesn’t take the numbness away and it doesn’t help the weakness in my right leg. But hey, I can handle those much better than pain.

Whenever I hear or think about the word “Gabapentin“, for some strange, free-association, reason it reminds me of the beloved punk rockers “The Ramones“. LOL.

Tommy Ramone, the last remaining original member of the Ramones, died of cancer at the age of 62.  Damn, that sux. RIP, Ramones.

Categories: Cancer

Uplifting Reading Material

Look at the uplifting reading material that I was given when I recently visited a pain management doctor…

Whoo hoo! My favorite pamphlet is the middle one because of what it says at the top, and the fact that all the people are smiling: “Let’s talk about the impending doom that will soon be upon you”.

Community-wide End-of-Life/Palliative Care Initiative

Yikes!

On a more “uplifting” but unrelated note, check out the new Bitcoin hat I bought from Etsy.com…

It’s much nicer than my older hat (see below) because, as one of my dear radar-nerd friends says: “It’s got more vertical aperture“. I hate hats that are so lacking in vertical aperture that you can’t see what it says when you put it on your head. 🙂

Categories: bitcoin, Cancer

Before And After

Before I was diagnosed with stage 4 cancer, I was always concerned about how to compassionately talk to a dying person, face-to-face. What do you say? How do you say it? Do you crack jokes? Talk about the weather? Pop culture? Politics?

After I was diagnosed with stage 4 cancer, I now worry about the transposed dilemma. How does a dying person talk to “living” person face-to-face? The same questions apply. What do you say? How do you say it? Do you crack jokes? Talk about the weather? Pop culture? Politics?

Since I’m not on my death bed, I don’t consider myself dying imminently. But the above rambling is a mild sampling of the type of thoughts that arise in my consciousness from time to time. It’s impossible to control which thoughts involuntarily appear in one’s head, but it’s possible to control how one responds to those thoughts after the fact. I try as best as I can to “think it” and then to “let it go“. An unhealthy, alternative response is to “think it“, “think it again“, “think it again“, “think it again“….. you get the picture.

For some wondrously strange reason, writing this post reminded me of one of the funniest scenes ever from the Sopranos HBO series. It’s not a “Before and After” scene, it’s a “Before and Waaay Before” scene…..

 

Since we’re all in a good mood now, here’s what I think is THE funniest Sopranos scene of all time: The “Mix It With The Relish” scene.

What’s your favorite funny Sopranos scene and, while you’re here, what are your thoughts on how to talk to a dying person? 🙂

Categories: Cancer Tags:

Year Three

April 12, 2019 4 comments

Wow! I just noticed that I haven’t posted anything on this god forsaken blog in almost three months. That’s a far cry from when I accepted WordPress.com’s “Post a Day” challenge waaaaay back in 2011. Being a total blowhard back then, I easily conquered the challenge and spewed some verbal diarrhea up on here every single day for the entire year. If you’re bored to tears (or you’re so weird that I wish you weren’t reading this blog), you can fact-check me by clicking on the “postaday2011” tag on this page and reading every post. 🙂

I’m stunned and thrilled to report to you that I recently “celebrated” my 3 year cancerversary 2 months ago. As you might guess, I’m quite a statistical outlier for a stage 4 lung cancer survivor. Did you know that lung cancer kills more people per year than breast, colon, and prostate cancer combined? Yikes!

My first two years of doing battle with the “emperor of all maladies” were a breeze compared to this last year. I’ve been feeling a relatively slow, but sure, decline in my physical and mental well-being over the last 12 months.

Physically, the standard chemo (Carboplatin/Taxol/Avastin), brain radiation (CyberKnife), targeted chemo (Gilotrif), and immunotherapy (40+ Opdivo infusions) treatments have killed my thyroid and severely limited my mobility. The peripheral neuropathy in both of my feet, my right leg, and (most recently) my mouth has been getting worse.  The numbness is starting to creep up further beyond my toes and higher on my right leg. The “tingling” is morphing into “hot” pain. It feels like someone is slowly pulling up a stocking from my toes to my thigh.

Mentally, I’m feeling both anxious and exhausted more often. I’m finding it impossible to latch on to a new topic and perform a sustained, deep dive to learn more about it and revel in the warmth of a new understanding. And of course, it’s getting very tiring holding back those cancerous thoughts just chomping at the bit to burst through the door.

But hey, enough of the whining…. let’s have some fun while we still got time….

 

 

Categories: Cancer

New Normals, Less Than The Old Normals

January 19, 2019 Leave a comment

Every time I try to increase my level of physical activity, my feet catch on fire, my right leg turns to rubber, and somebody starts crashing cymbals inside my head. During my latest trip to the oncologist, I was gently told that this may be my latest “New Normal”. The implication is that more “New Normals, Less Than The Old Normals” may be on the way in the future. Of course, if I wasn’t a stage 4 cancer patient, I’d be freaking out  like:

But since I totally accept, with Buddha-like coolness, my progressively devolving body, I’m Ok with the impending new normals. Um, well, I hope I am.

 

Categories: Cancer

Chronic Blood Products

December 10, 2018 4 comments

The title of this post is pretty scary, no? But hey, ’tis the sort of language one hears a lot when diagnosed with cancer.

Specifically, the latest MRI of my gnosh, performed on 11/26/18, states:

There are chronic blood products associated with the parenchymal lesions (i.e. brain tumors)

Want another good one? Try saying “vasogenic edema“, a la:

Localized vasogenic edema in this location is not significantly changed

Let’s move on to some scary words written into my latest chest/abdomen/pelvis CT scan performed on 12/3/18:

Interval increase in size of a left common iliac chain lymph node (from .7 cm to 1.9 X 2.4 cm), concerning for worsening metastatic disease

Ok, ok, enough doom and gloom. As I’ve said in a previous post, an excellent word that is joy to the ears of a cancer patient is “unremarkable“, as in:

Spleen: Unremarkable

Pancreas: Unremarkable

Gall Bladder: Unremarkable

Adrenals: Unremarkable

Kidneys/Ureters: Unremarkable

 

 

Yepp, you read that right. Seeing the words “unremarkable reproductive organs” on your CT scan report is exquisitely delicious!

Categories: Cancer

Your Explanation Of Benefits

October 25, 2018 1 comment

Whenever one of my healthcare providers submits a claim to my health insurance company for payment, I get one or more of these “Explanation Of Benefits” emails from my health insurance company.

Since I have cancer and I am constantly at the doctor’s office or infusion facility for ongoing treatment, I get lots of these “scary” notices. They’re scary because, as we all know, the cost for any health procedure/service is astronomically high in this country.

I always cross my fingers when I click on the link in the email to read the details because it sucks when one or both parties makes a stupid bureaucratic mistake and I get stuck temporarily with a bill for hundreds or thousands of dollars. It’s a pain in the ass to get the billing straightened out – especially when I’m not feeling too well and I have to play phone ping-pong with either the doctor’s office, the health insurance company, or both. What a shitty healthcare system.

Categories: Cancer
%d bloggers like this: