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My 29th Birthday

September 2, 2018 Leave a comment

On Monday 8/27/18, I underwent a “routine“, tri-monthly, CT scan of my chest and abdomen. At the follow-up appointment with my oncologist a couple of hours later, he summarized the findings with: “everything is still under control“. On top of that, the troublesome lymph node that had shown growth for two consecutive scans did not show any further growth between the last scan and this current scan. Whoo hoo, another 3 month reprieve!

On Wednesday 8/29/18, I underwent my 29th, bi-weekly, Opdivo infusion. Since the Opdivo has been preventing the big C from “progressing“, I consider each infusion day a birthday to celebrate!

Categories: Cancer

An Unlikely Duo

August 30, 2018 Leave a comment

In a pseudo-creative twist on my “Wardrobe Addition” post, I decided to reposition the faux jewelry I wear on my wrists to illustrate what two topics are of utmost importance to me these days.

I can picture people who see this for the first time saying to themselves….

Damn, that bloke has some bitcoin AND cancer? I hope he’s still around when bitcoin hits $100,000/BTC.

Oh, in case you were wondering what the hell the Fitbit is doing in the picture, it was there already and I was too lazy to take it off.

Categories: bitcoin, Cancer

Wardrobe Addition

August 28, 2018 Leave a comment

I just received this lovely bracelet from my awesome “bitcoin” niece.

It goes nicely with my other “Fuck Cancer” memorabilia, dontcha think?

Categories: Cancer

Unremarkable

August 25, 2018 Leave a comment

When you’re battling cancer, one of the most comforting words you can see while reading through the medical-eze of CT, MRI, and PET scan reports is “UNREMARKABLE“. For example:

Upper Abdomen: Unremarkable impression

Of course, since “context is everything”, I’d wager that, in most contexts, hearing the word “UNREMARKABLE” is not very comforting.

 

Categories: Cancer

The Macabre Reading List

August 24, 2018 3 comments

Look at all the uplifting books I have read, am currently reading, or plan on reading:

Got any other recommendations?

Categories: Cancer

Know Your Enemy

August 22, 2018 Leave a comment
Categories: Cancer

Walking Around Drunk, Without Being Drunk. WTF!

August 17, 2018 1 comment

After I was first diagnosed with lung cancer via a CT scan of my chest, I underwent a follow-on PET scan and a full head-to-toe MRI to look for any nooks and crannies in which factions of the emperor’s forces were doing their dirty deeds. Except for a small spot under my right armpit that lit up on the PET scan, the emperor’s forces were all concentrated in my right lung and chest area. The bad news was that even though the cancer was localized in my right chest, it wasn’t localized enough. It was deemed inoperable because there were multiple tumors and adjacent “lymph node involvement“. Bummer.

A few months after the initial CT/PET/MRI barrage, and following several, tri-monthly maintenance, chest CT scan cycles, I started to feel some weakness, numbness, and loss of motor control in my right leg. So much so that it caused me to limp slightly. At first, I thought it was due to lower back bulging disc issues that I’d experienced on and off over the years. The weird thing about this episode was that there was no accompanying pain. Hint: brain metastasis.

After reporting this symptom to my oncologist, he ordered a second MRI of my brain. Low and behold, the MRI detected 3 metastatic brain lesions; two on the left side of my brain and one on the right side. The largest of the 3 was located in a position (left side, posterior region) to be the cause of the numbness/weakness in my right leg.

After undergoing 10, half-hour, Cyberknife radiation treatments, my limp temporarily got worse due to the accompanying inflammation around the zapped tumors. It reached the point where I couldn’t drive anymore and I had to use a cane.

Over time, the inflammation subsided enough so that I could ditch the cane and start driving again. I was able to “feel” the accelerator under my right foot once more and I became confident that when I commanded my foot to switch between the gas and brake pedals, it would obey my command! At first, I had to keep lightly tapping the gas pedal so that I was constantly aware of where my right foot was positioned.

Fast forward to recently. About a month ago, I:

  • noticed my right leg getting weaker and more “rubbery”.
  • started waking up with small headaches in various locations (mostly at the back and bottom of my skull) that dissipated rather quickly after getting up.
  • noticed a loud tinnitus type of ringing in my head.
  • noticed my sense of “balance” deteriorating.
  • noticed the peripheral neuropathy in both my feet (permanent numbness and tingling from my first line of chemo treatments) would “flare up” from time to time. By flare up, I mean they would feel “hot” in addition to the “normal” background numbness and tingling that I felt 24 X 7.

And to top it off, it seemed that the more I was active, the more the symptoms got worse. I noticed the worsening of symptoms over time when I went to the gym for stretching and light treadmill work. So, I stopped going to the gym.

After reporting these new symptoms to my oncologist, he immediately put me on steroids (yet again) to help squelch any inflammation. He also ordered a STAT MRI for the next day.

After undergoing the MRI, the radiologist’s report had mostly good news. No new tumors were detected, and the 3 existing tumors were not growing:

Notice the comments containing the words “vasogenic edema“.

Vasogenic edema occurs due to a breakdown of the tight endothelial junctions that make up the blood–brain barrier. This allows intravascular proteins and fluid to penetrate into the parenchymal extracellular space – Wikipedia

It’s natural for the body to send white blood cells to sites of injury in order to battle infections. The convergence of those cells on a small area causes inflammation -> vasogenic edema. The inflammation can cause fluid leakage and/or compress nerves in the immediate area, or both. Steroids suppress the immune system so that not as many white blood cells converge on the injury site, thus stunting the inflammation growth. However, the trade-off is that steroids work against immunotherapy drugs like Opdivo, which jack up the immune system to attack the emperor’s forces.

At first, I was put on 8 mg of decadron per day to suppress the inflammation. After noticing the symptoms diminishing, I was weaned off of the steroids. After noticing the symptoms coming back, I was put on steroids again, this time at a lower dose of 2 mg per day.

Next up is another MRI. Hopefully, it will still show no new tumors and inflammation stability around all three of the existing tumors. However, even though I’m still on steroids, my balance is still a little off and the weakness in my right leg still prevents me from driving. It feels sort of like walking around drunk without being drunk. Bummer, that’s what life in hell must feel like! On the bright side, the headaches are gone, the peripheral neuropathy flareups in my feet have diminished, and the tinnitus isn’t as loud.

In summary, here’s where I stand (err, sit?) today: I’m not driving and I stopped going to the gym. Hopefully, I’ll be able to get off of the steroids and I’ll be able to perform both activities again soon. Until then, it’s the same old, same old: bi-weekly infusions, tri-monthly CT and MRI scans, periodic and “specially needed” doctor appointments, continuous symptom monitoring, reading, blogging, binge TV watching (Sopranos + Ray Donovan right now), and lunch/movie dates where friends pick me up and drop me off.

Categories: Cancer
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